Rare Diseases and Orphan Drugs

The patient advocacy group have the minimum members of health advocates they play a vital role for rare disease patients by providing educational resources, support and the sense of community. These patient advocates are the connection between patients and health care providers to improve and maintain high quality healthcare to the patients. They are different types of patient advocacy groups . they are generally a non profit and focus on the unique diseases or disorders or aspects of health care . these advocates are referred as health advocacy organizations.

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